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Neurología Mancha-Centro

Servicio de Neurología del Area Mancha Centro - Hosp. General Mancha Centro y Hosp. General de Tomelloso

Blog de Neurologia Post New Entry

Día Mundial de la Esclerosis Múltiple

Posted by JORGE MILLAN PASCUAL on May 28, 2014 at 12:25 AM

Hoy 28 de Mayo es el día mundial de la ESCLEROSIS MÚLTIPLE (EM) y aunque desde aquí nos acordemos de esta enfermedad todos los días del año, puede ser un buen momento para que hagamos algo de divulgación para informar y concienciar a todos de la importancia de esta enfermedad. Vamos a dar unas ideas de lo que es la EM y despúes presentaremos una iniciativa muy interesante y a la que todos podemos contribuir.

¿Qué es LA ESCLEROSIS MÚLTIPLE?

Se trata de una enfermedad crónica que afecta en España a más de 50000 personas, sobre todo a mujeres jóvenes y es la segunda causa de discapacidad en países como el nuestro tras los accidentes de tráfico. Cada año se diagnosticarán unas 400 personas en nuestro país y sabemos que desde hace al menos 20-30 años, cada año se diagnosticarán más casos.

La causa última de la EM es desconocida pero sabemos que esuna enfermedad autoinmune, es decir, nuestros linfocitos (las células encargadas de defendernos de las infecciones) atacan a las neuronas y a los oligodendrocitos (células de nuestro sistema nervioso) causando los diferentes síntomas de la EM (que otro día contaremos). Actualmente no tenemos un tratamiento curativo pero disponemos de fármacos eficaces para mejorar los síntomas y el curso clínico de la enfermedad.

Pero hasta que llegue ese día toda la sociedad tenemos que concienciarnos con la EM y concienciar a las autoridades sanitarias para que todos los pacientes puedan disfrutar de los tratamientos disponibles y de la protección de la Sociedad con el fin de mejorar la calidad de vida de los pacientes. 


Y ahora la INICIATIVA

En el año 2013, Esclerosis Múltiple España y otras asociaciones regionales (País Vasco, Madrid y Cataluña) con el diseño de Kukusumusu lanzaron el juego "EM Fighter" con idea de sensibilizar a la sociedad desde un ámbito lúdico a cerca de la enfermedad y la necesidad de encontrar entre todos soluciones que mejoren la calidad de vida de los pacientes y sus familiares.

Este año se lanza "EM FIGHTER 2" con una nueva aventura "Run and jump" donde la protagonista, la neurona "Neuri" superará múltiples retos en su lucha contra la EM. El objetivo de este año es llegar a los 5.000.000 de puntos y entre todos podemos conseguirlo!

La aplicación es gratuíta para smartphones y tablets:

Para iOS: https://itunes.apple.com/us/app/id876427418

Para Android: https://play.google.com/store/apps/details?id=com.mandukagames.lafactoria

Un saludo y luchemos contra la EM.


Categories: Neuroinmunología

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